Privacy Archive

Patient Records: Why Doctors Don’t Want to Share

Travis Good writes on the perceived dilemma presented by the movement to give patients control (and therefore, ownership) of their own medical records. I’ll start off by noting that the HIPAA rule clearly gives health data ownership to the patient at a reasonable cost.  ”Great,” you say.  ”I can request my record, and …

Health Systems Getting “Creative” with Big Data

We need to digitize health data to improve outcomes. We need to get the data from EMRs into the hands of researchers in order to tackle obstinate diseases. We have heard all of these before – altruism rules, perhaps, when we think about a potential cure for cancer.  “Sure, digitize …

Thoughts on the Health Privacy Summit (Day1)

I couldn’t make the full day of the 2014 International Health Privacy Summit, but I was able to listen to many of the early sessions online.  I settled in for the last two sessions in person, made it to the Brandeis award reception, and am settled in to process the …

Follow-up: HHS National Security Strategy

As a follow-up to my post yesterday about the US Department of Health and Human Services’ “National Health Security Strategy 2015-2018,” I’d like to respond to a few questions that arose surrounding the sources of data that would comprise a large, unified national health database. At risk of running afoul …

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